DENVER - Editor's Note: The petition reached the 100,000 mark on Tuesday, March 25. Earlier story below.
A member of the Colorado Avalanche hockey club is lending his Twitter account to help a Colorado boy who is battling Duchenne muscular dystrophy.
Ryan Dunne is in need of a new drug, a breakthrough that has given his family hope, but it is one that has yet to be approved by the Food and Drug Administration.
His parents say it is taking too long are hoping to pressure the White House to allow the 9-year-old access to the drug sooner rather than later.
They have filed a "We The People" petition to "Urge the FDA to Say YES to Accelerated Approval for safe, effective therapies for children with Duchenne."
READ MORE - See the petition: http://ch7ne.ws/PYOjJE
There's been a strong response from the community, but time is running out.
According to the WhiteHouse.gov website, 100,000 signatures are needed by March 29 in order to advance the petition to the White House staff, who will review it, and ensure it is sent to the appropriate policy experts to issue an official response.
As of 4 p.m. Friday, about 65,000 signatures have been collected with eight days to go.
"With every passing day Ryan is losing strength," said his mother, Jennifer Dunne.
"Now there is a real scientific medical alternative that actually works, but we can't get it," said his father, Chris Dunne. "The FDA has all the power in the world to grant accelerated approval and we don't have any more time for them to figure this out."
Avalanche star Matt Duchene has joined the fight to help by tweeting Dunne's story to his 193,000 followers on Twitter.
"We are in a position to help the community, so it's the right thing to do," he said.
"I do not want to be considered the last generation of mothers whose child dies from this disease," said Jennifer Dunne. "I want to be considered the first generation of mothers who got their children to live from this drug."
HELP NEEDED! There is a little boy in our Denver community named Ryan Dunne and he is nine years old. He is dying of a disease called...— Matt Duchene (@Matt9Duchene) March 20, 2014
...Duchenne Muscular Dystrophy. There are 2 meds which can treat Ryan's disease but for Ryan to get these meds he needs an FDA approval.— Matt Duchene (@Matt9Duchene) March 20, 2014
...For the FDA to approve his meds he needs 100,000 signatures. You can help and sign this petition by going on https://t.co/VxTky6299k— Matt Duchene (@Matt9Duchene) March 20, 2014
Please go to the site and sign, you could save Ryan's life. Thank you and God Bless— Matt Duchene (@Matt9Duchene) March 20, 2014