Avalanche player Matt Duchene joins fight to help Colorado boy battling muscular dystrophy

Family: Ryan needs 2 drugs awaiting FDA approval

DENVER - Editor's Note: The petition reached the 100,000 mark on Tuesday, March 25. Earlier story below.

 

A member of the Colorado Avalanche hockey club is lending his Twitter account to help a Colorado boy who is battling Duchenne muscular dystrophy.

Ryan Dunne is in need of a new drug, a breakthrough that has given his family hope, but it is one that has yet to be approved by the Food and Drug Administration.

His parents say it is taking too long are hoping to pressure the White House to allow the 9-year-old access to the drug sooner rather than later.

They have filed a "We The People" petition to "Urge the FDA to Say YES to Accelerated Approval for safe, effective therapies for children with Duchenne."

READ MORE - See the petition: http://ch7ne.ws/PYOjJE

There's been a strong response from the community, but time is running out.

According to the WhiteHouse.gov website, 100,000 signatures are needed by March 29 in order to advance the petition to the White House staff, who will review it, and ensure it is sent to the appropriate policy experts to issue an official response.

As of 4 p.m. Friday, about 65,000 signatures have been collected with eight days to go.

"With every passing day Ryan is losing strength," said his mother, Jennifer Dunne.

"Now there is a real scientific medical alternative that actually works, but we can't get it," said his father, Chris Dunne. "The FDA has all the power in the world to grant accelerated approval and we don't have any more time for them to figure this out."

Avalanche star Matt Duchene has joined the fight to help by tweeting Dunne's story to his 193,000 followers on Twitter.

"We are in a position to help the community, so it's the right thing to do," he said.

"I do not want to be considered the last generation of mothers whose child dies from this disease," said Jennifer Dunne. "I want to be considered the first generation of mothers who got their children to live from this drug." 

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